Life with Big C

Life takes an interesting turn everyday and when the community is inflicted with Plague ( COVID 19 is again rising in India ) & you have been diagnosed with a cantankerous illness, aka Cancer, the experience becomes even more “colorful”. So here I stand, a little over a month since my surgery and still wonder, by which turns & unexpected paths, did I manage to reach this stage of life & how come I have this disease? But reality as always sets in & I have just have to look at my hands, marked with all kinds of intravenous & canula insertions, and know well, this is a fact & I have to not only live with it, but also learn to thrive with it.

Thriving of course involves medication to keep this ridiculous sickness at bay & that includes the “fun” thing called Chemotherapy. My first session of Chemo happened exactly a week ago. Again I am fortunate to have found an amazing set of doctors and a great hospital where the aim is to not only make the patient well, but also comfortable through the journey of getting well. The Chemo room is a day care center and maybe the hospital administration consciously put in charge nurses who are gregarious, bursting with life & enthusiasm. The whole mood of the room feels like a picnic more than a sick bay & there is Alexa playing upbeat music, a huge Television displaying the latest game of Cricket ( India runs on Cricket ) & my funny, crazy & extremely competent nurse convincing me to have the Pasta in the menu along with a chocolate brownie because they are the chef’s specialty! I was there for 8 hours and it did not feel long or painful. My doctors are all chatty, sharing funny stories but also always attentive to my condition with great advise on managing the side effects of Chemo. My awesome nurses ensured that I never felt any pain during the process, while keeping entertained with hilarious anecdotes. And my wonderful, elder sister never left my side, keeping me company, making me laugh & taking care of all hospital logistics, so that I do not need to worry about them. Needless to say, not only did I have a smooth & comfortable session, but actually a fun one.

However Chemo even when dispensed with utmost care is Chemo. It shall make it’s presence felt loud & clear to all & sundry & ensure everyone is aware of it’s “magnificence”. The initial two days after Chemo, thanks to a 500 ml Iron intravenous that was given at the hospital, I felt absolutely glorious, living, breathing as never before. Then on Monday, the side effects kicked in; Monday was nausea, bouts & bouts of it, but thankfully I had been proactively prescribed medication to combat this if & when needed and by evening things were good. Then I had a happy, comfortable & uneventful Tuesday but Wednesday brought more developments. I woke up with an wrecking back pain; walking , sitting, eating, any & every movement became painful & despite taking painkillers to address this, the relief was temporary. But I crawled through Wednesday & Thursday was an improvement. Finally I sit here on Friday & today is a good day, where again, all my body parts feel like they belong to me & are not hosting a rebellion. The simple joy of having a body free of aches & pains; I never really appreciated the blessing until lately! Compared to many my pain is nothing & I am extremely grateful to the doctors & the forces that might be for ensuring that while I face my trials, I am given enough strength & support to make it a comfortable effort. I have resumed work for more than a week now, I am meeting friends ( those who come over, my travel is still limited ) , cooking a bit, taking walks ( my doctors tell me that the more active I stay, the lesser the side effects ) & writing. Slowly the pieces are coming together; though the big picture has changed very much!

I now understand that life for a while will be made of good & bad days. Good days when everything will feel right & I can touch the sky & bad days when I just have to be patient & bear out the day until it passes. More patience & the need to make most of the moment are the guidelines which would define my life as I know it & hopefully ensure that I continue to live & thrive! I know I am getting well & these discomforts are temporary & I am being cured of the actual disease. I am much better, physically, intellectually & spiritually than I was even 6 weeks ago & I have much to be grateful for!

Among the many things that has helped me heal, is the constant texts, messages, pictures & outpouring of affection & support that I received from my blogging family. I call all of you my family because, though we may have never met in person, your standing by my side & cheering me on is nothing short of what a family does. My days are made so much better, when I wake up to messages & emails from all of you, bringing me hope & giving me infinite courage, to battle this demon out! I cannot even begin to express my gratitude for all your efforts & can only humbly say thank you! I am so blessed to have this tribe in my life!

Update on Big C

I wanted to share an update on the Big C situation in my life. I am blessed to have such an amazing blogging tribe whose affection and support is seeing me through this latest crisis and I know many of you are concerned about how I am faring.

So here’s the latest update from the C Ward –

I had a PET scan and Biopsy done in late June. The Biopsy revealed two illuminating facts; one I had two, not one tumor. One in my Ovary and another one in my Uterus and it was all Stage 2. It also came through that that both tumors were malignant and were different types of cancer, adding a whole new layer of complexity in an already difficult case. The PET scan revealed that most of the cancer was localized as in around the reproductive and abdomen area and not spreading too fast. Based on this my doctor kicked into action. My amazing gynecologist, Dr. Aruna Kalra, who does not lose her head nor believes in dilly dallying, had a plan set out immediately and a week from the biopsy, sat me down and explained the plan of action. She is someone who firmly believes in letting the body do its job with minimum medical intervention. She suggested we go for a debulking surgery, which would take out the tumor and any other cancer cell and then based on what the Tumor histogram suggests, the doctors would do a few rounds of Chemo. She then set up a meeting between me and the Oncologist Surgeons and I met Dr. Vinay Gaikwad and Dr. Jyoti Bhat, the men who would cut me open and try and ensure that I become well again. They were wonderful and as things progressed, I would also understand that they were kickass doctors, the very best in their job and more importantly, few of the nicest, kindest human beings I would have the good fortune to meet. They explained the entire surgery process to my sister and me; they did not hide any facts; they called out that this would be a complex surgery, that there are some inherent risks when a surgery, any surgery happens, but they also stated that they were confident that I will pull through.

As per plan, I was admitted in the hospital on July 5th and on July 6th, 8:30 AM, they wheeled me in for pre-OT procedures. My sister was petrified of the future and I despite all the kind assurances of the doctors from previous night, was so so scared. I was given a local anesthesia, then an epidural injection and then a general anesthesia. I only recollect to waking up groggy, looking up at the faces of my sister and Dr. Jyoti Bhatt and I knew that I had made it to the other side, I had survived the complex surgery and in that vague state of semi consciousness, I knew that now I can make it to the rest of journey to full recovery. They kept me in the ICU for the remaining day, moving me to a room the very next morning. My doctors, both Dr. Gaikwad and Dr. Bhat while the kindest souls do not believe in molly codling; they made me sit up for several hours the very next day of the surgery; there I was with 14 different pipes hanging out of my body and I do not know how many stitches across my abdomen and cervix, sitting pretty. They made me walk on the second day and made me eat food the third day; by the third day evening, they came in, told me with a lot of pride, affection and joy that I was doing splendidly and could go home the next day.

Poppies (also called Poppy Field), oil on canvas by Claude Monet, 1873; in the Musée d’Orsay, Paris.

I met them twice post coming home, and I was advised that my recovery was marvelous and that it gave them infinite pleasure to see their patient “walk in” without any aid, barely 10 days after the surgery. My stitches all came off earlier this week and I have not felt this good and strong in several weeks. I still have an odd muscle pull here and there which I have been told is a natural consequence of losing so many tissues and other minerals due to the surgery but otherwise I am on top of the world. These amazing healers, were able to take out all the cancer impacted parts. They also did a highly difficult procedure while I was in surgery called HiPec, which very simply put is giving Chemo to kill all cancer cells not visible to human eye. Because of all these efforts by the surgeons, I have to go through only 6 rounds of Chemo, which will start on Aug 2nd and that too for preventive purposes only, they managed to take all Cancer impacted body parts and ensure I was completely well.

I cannot count my blessings for these brilliant, kind set of doctors that I found and who helped me through the shadow of valley of death. Later in conversation with the nurses and junior doctors who assisted the two surgeons would I understand how hard they had fought to keep me alive and get me well. The surgery went on for nearly 7 hours and the nurses tell me that they got tired but not once did Dr. Gaikwad or Dr. Bhat flagged. I had been told at one point my Blood Pressure kept free falling risking a heart attack and somehow, they brought me back to being stable. 3 bottles of blood had been set aside for my operation, but my blood loss was so high, they ended up using 6 bottles. And yet, despite all this, I am well in less than 2 weeks. I am hale and hearty like my old self; I felt no pain post the surgery, none at all. There was some restricted movement because of the stitches, but nothing else. I was as comfortable as one can get. All of these, because I stumbled upon two miracle workers. I keep saying they are wonderful humane beings not only because they healed me, but because, of the way the treated my loved ones. They kept my sister and family informed, proactively, of my health when I was in ICU or OT and not in a position to speak to them. Dr. Bhat would despite his crazy schedule ensure he checked in with my sister as to how I was every alternate day, once I came back home. Every time I meet them, they make me laugh, give me strength, and affirm my faith. Dr. Gaikwad tells me that it helps his fight against Big C when he has cheerful, optimistic patients like me; he tells me this is one disease where the mind has to triumph and unless it does that, the disease cannot be expelled. Therefore, he is always so proud of my courage, but I tell him, so much of this courage, this optimism, comes because I am in his hands and he along with Dr. Bhat had led me through the darkest hour and I stand indebted to them forever. If I am able to post this blog today, it is because of these two men and my wonderful gynecologist Dr. Kalra who set the ball rolling and did not stop until she saw me sitting up and smiling to her!

To end, I am well. Very well. I am glad to have made it here today and I appreciate my good fortune. Yes, now there are Chemo rounds to face off and that is a whole new battle, but I am hoping to overcome that part as well and come back stronger than ever. Thank You for checking in on me constantly, for your encouragement, your affection and your book recommendations. Your thoughts and prayers did as much good for me as these doctors. Thank You for standing by me!

The Big C

I know another huge disappearing act; but what can I say? Life just keeps throwing lemons and I am trying to make the best lemonade I can. To start with the months of March and April left India reeling with a devastating second wave of COVID 19. While I and my my immediate family were saved from direct impact, I have lost too many friends and relatives and sound of the ambulance through all hours on the main road next to my apartment block still makes me break into cold sweat. Things are better now but we have a long way to go and experts warn of a Third Wave in the country and I cannot even begin to fathom what that will bring.

While I was not impacted by COVID, I have been very unwell for more than 2 months. I have intermittent fever, severe weakness and a feeling of bloating and something not right inside me. I went through a round robin of doctors and pointless tests and I was told I am suffering from Calcium deficiency to IBS. But no medicines that prescribed worked and I continue to grow week, losing 12 kgs in 2 months. Finally in a fit of inspiration I reached out my gynecologist who recommended an Ultrasound test and then life began to unravel.

I am 38 years old and I have been diagnosed with Ovarian Cancer.

It took me a few days to let that sink in. I have never smoked in my life, never drank, let alone smoking up other substances. I ate good home cooked food, did hikes and generally faced life head on and with a lot of optimism, and this is my reward for playing by the rules No one in my family has a history of the big C. This was one curve ball I just did not see coming my way!

But life is what it is and we have to fight what comes our way. Good part is Ovarian Cancer treatment is highly advanced and this was caught well in time . My doctors are convinced of my full recovery and it still very much contained. Most importantly, like everything else in my life I shall fight and conquer this, come what may. This shall not destroy me; I shall conquer. I am blessed to have an older sister who has rolled up her sleeves and decided to throw it all to get me through this and friends who take up my fight on those days that I cannot bother to get out of bed. They have left no stone unturned; they are getting doctor appointments, ferrying me to and fro from tests and hospitals, getting second opinion. All I do no is rest and read; while everyone takes care of me with their own lives on hold. With so much love, how can I not come through this? How can I not win. I will win!

One help that I do seek from you is book recommendation – I have long hospital hours mapped out infront of me and I really need good engrossing reads . I am not picky – Classics, History, Non Fiction, Virago Collection, British Mysteries, Historical Fiction; anything will do as long as you all feel, they are good reads. So please humble request, please please share book recco!

I promise to stay in touch and keep you all posted.

Notes on Bookish Readings When Ill

I have been writing this post in my mind for the last 3 weeks since I have recovered from a painfully long bout of bronchio-asthma, but there have been out of station weddings to attend and friends to visit and preparation for a Project Management exam, that  blogging took a back seat and worse, for a while there was not enough time to even read! Anyway, such things are happily in the past and I hope I am back to the settled rhythm of daily reading and frequent blogging!

While I was laid up three weeks, I was mostly in a irritable temper, struggling to breathe while fever came and went and the Indian summer heat rose. I could not eat much and doing almost anything gave me a headache. The only thing I was capable of was watching endless reruns of F.R.I.E.N.D.S , but for such bookish creature like us, you can watch only so much of sitcoms, without yearning to dive back into books. Herein lay the problem, I was too ill, to read my April reading plan books….I could not bear to look at Shakespeare or Poe, Spenser made my eyes dance and see things and Willa Cather was simply out of the question! So I decided to hunt the ever reliable internet for some suggested readings when ill. However for once, the cyber space completely let me down; while some sites suggested the tried and tested Austens and Rowlings, most sites suggested some very grim readings, biographies filled with struggle and toil and one site even suggested As I lay Dying (I don’t know if the guy was being funny!!) I don’t know why people would read such stuff when they are physically so unwell, which in turn has to have a psychological impact! Why read depressing stuff when you are already  down and out, but I guess, different strokes for different folks and for a different folk like me and I am hoping other like me, we need a much more cheerful reading list. Therefore, I humbly present to you 10 books/series/authors  you ought to read if you feel like laughing out loud or even chuckling a bit or simply take your mind off the physical trauma, when laid up with maladies –

  1. Jane Austen – Devoted as I am to Ms. Austen, I must say she has helped me recover several times in my life and made the illness more bearable. I do not recommend all her works but Pride and Prejudice, Emma and the lesser known Lady Susan! In the author’s own words – light, bright and sparkling!
  2. Terry Pratchett- I have said this before and I will keep saying it again, the world is a better place, thanks to Sir Terry. When your are completely fatigued with the mundane sameness of your surroundings, compounded by a sever iron grip variety headache, take a walk in the Discworld and meet the witches and the watch and Death and so many more characters, that will take you to whole new world and keep you there laughing, agreeing and coming out as a much more happier, healthier and even a better human being!
  3. Short Stories by Saki – The much lesser known Hector Hugo Munro, aka, Saki is the perfect anecdote when you are irritable and cannot stand your fellow creatures! Saki’s short stories filled with irreverent humor and biting sarcasm is a treat, as you wander into a 1900’s England filled with social gaities and find succinct observations, served with irony and dash of laughter to help recover your soul!
  4. Sherlock Holmes Series by Arthur Conan Doyle – You want to escape the physical discomfort, then there is no better escape than Victorian England where a hook nosed, opium using detective takes you down the lanes of England and Europe to unravel some of the most unbelievable acts of crime!
  5. Father Brown Series by G.K. Chesterton – While very different in tenor, than the Sherlock Holmes series, Father Brown is another detective, with whom you will be alert and constantly involved as you unravel one gritty mystery after another, in a intuitive, philosophical and patient way, that characterizes , one of the best detectives in Fiction!
  6. Miss Marple Series by Agatha Christie – When you are ill, and need a distraction, who better than the queen of crime. While all most all her books are addictive, I prefer Miss Marple, because I cannot get over the impression of a weak woolly old lady going after some of the most ruthless criminals and that kind of always makes me feel better and hope that I will recover soon!
  7. Harry Potter Series by J.K. Rowling – Cliched, I know! But I cannot help it! The wizard world is such a pick me up and then there are all kinds of fantastic creatures and constantly changing dynamics and yes, there are several deaths, but the books always end in hope! So it is way better option than As I Lay Dying, when ill!
  8. Lord Wimsey’s Series by Dorothy Sayers – I read my first and only Dorothy Sayers when I was ill and she did me a world of good! First impressions are not usually a thing to go buy, but I am taking a chance here – me think reading her when ill, will make you feel infinitely better! At any case I can vouch for Busman’s Journey, among all the other books in the series!
  9. Jeeves and Wooster by PG Woodhouse – Need I say anything! A Jeeves is exactly what you need when so ill,but it being in short supply and only available in fiction, wade through the mis– adventures of Bertie Wooster in 1920s England as he is rescued and saved every time by the dependable Jeeves!
  10. Asterix Comic Books by  written by René Goscinny and illustrated by Albert Uderzo – Follow the Gauls through one magnificent adventure in Roman world after another, as they meet Caesars and Cleopatras and discover pun like never before! Laughter and more laughter!

There you go folks, that’s my list and my recommendation! What are yours?